Kinderwelzijn   

Aangemaakt door :

Michel van der Schaaf

Locatie:

Amsterdam, Nederland

I am starting a campaign for DEMIR ALI. Demir Ali was diagnosed with spinal muscular atrophy (SMA) type 1. To have a better future, Demir Ali has to receive a genetic therapy called Zolgensma. Zolgensma costs € 1.8 million Euros, with additional expenses the total amount reaches € 2.1 million Euros.

Save Demir Ali’s Life !

 


I am starting a campaign for DEMIR ALI BAYRAKTAR who is the son of my close friends, Ezgi and İbrahim BAYRAKTAR. Demir Ali was diagnosed with spinal muscular atrophy (SMA) type 1. In order to have a better future, Demir Ali has to receive a genetic therapy called Zolgensma. Zolgensma costs € 1.8 million Euros, with additional expenses the total amount reaches € 2.1 million Euros. Zolgensma approval only covers children under 2 years.


Demir Ali is almost 16 months old, meaning that we are literally having a fight against the clock. He must receive his treatment in the United States. Below, you can find the story of Demir Ali and his family. Your donations will be greatly appreciated. This campaign is dedicated exclusively to Demir Ali.




€ 5 van € 2.100.000
0% gefinancierd

Ondersteun deze inzamelingsactie door er een nieuwe inzamelingsactie aan te koppelen. Alle donaties worden toegekend aan de bovenliggende inzamelingsactie.