Help Children with SMA Disease
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Spinal muscular atrophy (SMA) or spinal muscular atrophy is an inherited muscle disease usually occurs when children are very young. In SMA disease, muscle control is impaired. It is the most common genetic cause of infant death: about 600 children in Europe are born each year with SMA, a rare disease that affects muscle function, including breathing, swallowing and movement.

The most severe SMA type 1 affects about half of the affected children: the first signs are visible at birth or in the first few months after birth. Research has made great progress. In particular, the gene therapy drug Zolgensma has shown important results in SMA treatment. It is the most expensive drug in the world: the treatment costs more than 2 million euros.

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Crowdfunding For SMA

Zolgensma is a one-time-only gene therapy treatment for children aged less than two years with spinal muscular atrophy (SMA). Sadly, there are no healthcare insurance facilities for a drug this expensive. This is why patients or families can start fundraising through crowdfunding platforms to cover their healthcare bills.

Through crowdfunding, patients or families can register their cause and raise money from a global crowd. Of course, it is not that easy, and there are certain dos and don’ts in crowdfunding. However, it is one of the best ways to gather funds for an expensive treatment like SMA.

Make sure to create a strong donor relationship by being thorough with your campaign and thanking your donors for their kind gestures.

Find More Helpful Tips For Medical Fundraising By Reading Our Article –

Healthcare Fundraising: How To Raise Money For Medical Expenses

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Help Aruuzat fight SMA Disease - WhyDonate

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Donate for baby Aruuzat diagnosed with SMA Disease

Aruuzat was diagnosed with Spinal Muscular Atrophy (SMA) type 1. It is a rare neuromuscular disorder that results in the loss of motor neurons and progressive muscle loss. To have a better future, Aruuzat must receive genetic therapy called Zolgensma! The Zolgensma approval only covers children under 2 years or 30 pounds. Aruuzat is 19 months old. It’s a fight against time. Your donation is highly appreciated!

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Van-Tess-tic – Help our Tess with SMA Disease

Tess was born in June 2019. The most beautiful baby, all the trimmings! Dennie and Ilse are proud parents of their first child. Very normal, you will think nothing to worry about… But a few months ago they suddenly received terrible news: after several tests, Tess was diagnosed with a muscle disease called SMA type 2. A serious muscle disease that manifests itself in children between six and eighteen months. Children still learn to sit, but not to stand or walk independently.

How do we want to achieve this? We already have all kinds of plans, such as a spinning event (as soon as the weather is allowed and allowed), a crowdfunding, an auction – everything we can think of to give our little girl and her parents a less anxious life. Will you help us?

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Help Celinka with Gene Therapy and Rehabilitation for SMA Type 1

Celinka was born in 2020. She was born seemingly healthy, so she was quickly released from the hospital. The parents thought that the most beautiful period of their lives had begun! Unfortunately, after a few weeks, they noticed that something troubling was going on with their daughter. She couldn’t lift her feet. She didn’t wave her hands like the other babies. After numerous medical consultations, many hypotheses emerged, but the worst-case scenario was finally confirmed. The girl suffers from SMA type I. Thanks to many donations, Celinka is participating in gene therapy. It is necessary to continue the intensive rehabilitation. This is a huge expense, the coverage of which is beyond the financial reach of the parents. Rehabilitation is a huge effort, but it produces visible results. Will you help too?

How to start a fundraiser?

Follow these 4 simple steps

1. Start A Fundraiser
Sign up on WhyDonate and create your fundraiser in minutes. Sign up as a person or an organisation.

2. Share Your Fundraiser
Share your fundraiser via Email, WhatsApp and other social media channels to reach as many donors as possible.

3. Receive The Donations
The donations are paid out automatically to your bank account on a monthly basis without any platform cost.

4. Thank Your Donors
Customize the automated “Thank You” email or send a personal message to your donors via the WhyDonate dashboard.

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Start a Free Fundraiser for SMA Disease Treatment

SMA Disease

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SMA Type 1

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What is SMA disease

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Crowdfunding For SMA

Donors

Fundraisers

Charities

Donated

WhyDonate Fundraising Stories

Donate for baby Aruuzat diagnosed with SMA Disease

WhyDonate Fundraising Stories

Van-Tess-tic – Help our Tess with SMA Disease

WhyDonate Fundraising Stories

Help Celinka with Gene Therapy and Rehabilitation for SMA Type 1

How to start a fundraiser?

Follow these 4 simple steps

Start a Free Fundraiser for SMA Disease Treatment

Google Reviews

WhyDonate Happy Customers

Hayo de Vries

Robin Wuyts

Matthijs van der Meulen

Stijn Belt

Coen de Haan

Ton Erling

Fundraising Features

Why Is WhyDonate The Best Fundraising Platform?

0% Platform Fee

Customer Support

Raising Money Worldwide

Dashboard

Network

Get Started Right Away

Instant Payouts

Custom Branding

Security And Privacy

Charity Fundraising & Personal Crowdfunding

Start A Fundraiser

Help Children with SMA Disease
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